PulmoCor: national registry for pulmonary hypertension

Pulmonary hypertension (PH) is a condition that refers to a mean pulmonary artery pressure of at least 25 mmHg measured by right heart catheterisation at rest. PH is classified in five groups based on the underlying clinical condition [1]. Some of these conditions are orphan diseases and managed in designed tertiary PH centres with dedicated multidisciplinary teams. During the last decades great progress has been made on the epidemiology, aetiology, pathophysiology and treatment of PH. Some of these efforts were mainly based on national PH registries, first published in the early 1980 s [2]. The primary goal of these clinical observational PH registries is to describe patients with PH and the impact of this disease [3]. Until recently, no such a national PH registry was available in the Netherlands.